Introducing...
   


 

 

Where To Go For Help

Endocrinologist
Dr. Lyndon Key
Rutledge Tower
135 Rutledge Avenue
Charleston, SC 29425
(843) 876-1417 begin_of_the_skype_highlighting              (843) 876-1417      end_of_the_skype_highlighting
Neurosurgeon
Dr. Robert Keating
Children’s National Health Center

111 Michigan Avenue, NW
Washington, DC 20010
(202) 884-3020 begin_of_the_skype_highlighting              (202) 884-3020      end_of_the_skype_highlighting(202) 884-3091 begin_of_the_skype_highlighting              (202) 884-3091      end_of_the_skype_highlighting fax

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
(203) 744-0100 begin_of_the_skype_highlighting              (203) 744-0100      end_of_the_skype_highlighting
www.rarediseases.org

Genetic Alliance, Inc.
4301 Connecticut Avenue, NW
Washington, DC 20008-2369
(202) 966-5557 begin_of_the_skype_highlighting              (202) 966-5557      end_of_the_skype_highlighting
www.geneticalliance.org

Make-A-Wish Foundation of America
3550 North Central Avenue, Suite 300
Phoenix, AZ 85012-2127
(800) 722-9474 begin_of_the_skype_highlighting              (800) 722-9474      end_of_the_skype_highlighting
www.wish.org
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)428-7100 begin_of_the_skype_highlighting              (914)428-7100      end_of_the_skype_highlighting • Fax: (914)997-4763
Tel: (888)663-4637 begin_of_the_skype_highlighting              (888)663-4637      end_of_the_skype_highlighting
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse

1 AMS Circle
Bethesda, MD 20892-3675, USA
Tel: 3014954484 • Fax: 3017186366
Tel: 8772264267 • TDD: 3015652966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/Health_Info
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: 9203365333
Fax: 9203390995
Tel: 8773365333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/