Breaking News!
HCS Gene Found!Mutations in NOTCH2 cause Hajdu-Cheney Syndrome, a disorder of severe and progressive bone loss.
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Truncating mutations in the last exon of NOTCH2 cause a rare skeletal disorder with osteoporosis.
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Mission Statement 
- To provide a forum for individuals with Hajdu-Cheney Syndrome and their families to connect and support one another.
- To provide a central repository for comprehensive medical information for individuals with HCS and their families. This information will have definitions and will break down some of the medical terms to be easily understood by non-medical persons.
- To provide a list of medical providers with experience with HCS.